On July 16, the “Love is not rare, benefit from moving forward” children’s rare disease care activity was successfully held in Shanghai Children’s Medical Center. The event was co-hosted by Pacific Health Insurance, a subsidiary of China Pacific Insurance, Shanghai Soong Ching Ling Foundation, and Shanghai Children’s Medical Center affiliated to Shanghai Jiaotong University School of Medicine.
This activity includes love assistance, rare disease science popularization, free clinic and other links. While actively improving the public’s awareness and participation in rare diseases, it also links the superior resources of all parties to provide help for children with rare diseases and their families, so that the light of “Little Blue Flower” is shining into the hearts of more and more children with rare diseases.
The organizer and the family of the rare child at the event site
The free clinic sends warm “little blue flowers” into the hearts of children with rare diseases
At present, there are 20 million patients with various rare diseases in my country, and about 200,000 new patients are added every year. With a huge base, rare diseases are actually not “rare”. How to actively deal with them has become an unavoidable social problem. Children with rare diseases especially need care from all walks of life.
As one of the sponsors, Shanghai Children’s Medical Center has made a series of important achievements in the field of rare disease diagnosis and treatment. At present, it has diagnosed more than 600 difficult and rare diseases, more than 10 of which are “first reported in the world”, and more than 100 of which are “first reported in China”. Through the “Little Blue Flower” project, more children with rare diseases will be provided with multidisciplinary cooperative diagnosis and treatment to help them overcome difficulties.
Hong Li, vice president of Shanghai Children’s Medical Center, said: “Children with rare diseases need the care of the whole society. In addition to hospitals, they also need the participation of caring institutions such as Pacific Health Insurance to provide children with high-quality medical care and the warmest service.”
Dr. Li Xin, Dr. Li Qun, and Dr. Zhang Qianwen from Shanghai Children’s Medical Center conducted science popularization on three rare diseases including NOONAN syndrome, Delange syndrome and ALSTROM syndrome.
During the free clinic, seven experts from the Department of Endocrinology, Department of Neurology and Nutrition, Department of Cardiovascular Medicine and other professional departments of the Children’s Medical Center participated in the free clinic, patiently and meticulously diagnosed nearly 100 children with rare diseases present, and provided personalized treatment suggestions and daily maintenance guidance.
Experts from Shanghai Children’s Medical Center carefully answered questions for parents of children with rare diseases
Pouring flowers with heart can be so “blue”
Among the current public welfare projects, the “Little Blue Flower” project has shown special appeal, not only because of the particularity of its focus group, but also because since the establishment of the project, the sponsors have worked together to explore, the connotation of the activity has been continuously deepened, and the implementation methods have also become diversified and rich.
In November 2022, Pacific Health Insurance joined hands with Shanghai Soong Ching Ling Foundation and Shanghai Children’s Medical Center to carry out strategic cooperation in the “Little Blue Flower” public welfare project in the field of rare diseases in children. The project focuses on the four dimensions of cognition, treatment, rehabilitation and research of rare diseases in children, and helps to solve problems such as diagnosis and treatment, rehabilitation and social integration of rare diseases. On February 28 this year, the “Send You A Little Blue Flower” online public welfare free clinic activity was successfully held, and the “Little Blue Flower” love rights were simultaneously launched on the Pacific Health Insurance “Blue Medical Insurance” applet. Pacific Health Insurance actively explores the onlineization of users + public welfare, and drives more people in the society to participate in the cause of caring for rare diseases. In June of the same year, the “Little Blue Flower” dream catcher activity was officially launched. In addition to helping children with rare diseases realize their dreams, they also helped children and families through offline communication activities such as free clinics. This activity is a continuation of the dream catcher activity.
With the help of all parties, trickle down into a river. At the site of this event, the first donation of the “Little Blue Flower” public welfare project was implemented as planned, and Pacific Health Insurance provided 20,000 yuan in support for 7 children with rare diseases to help them treat and recover.
Hong Li (first from right), vice president of Shanghai Children’s Medical Center affiliated to Shanghai Jiao Tong University School of Medicine, Zhu Yaping (second from right), deputy secretary-general of Shanghai Soong Ching Ling Foundation, and Zhou Bin (third from right), deputy general manager of Pacific Health Insurance, attended the event
The person in charge of Pacific Health Insurance said that Pacific Health Insurance will continue to support the public welfare undertakings of rare diseases in children. Relying on the strong medical resources and scientific research capabilities of Shanghai Children’s Medical Center in the field of rare disease diagnosis and treatment, it will help more children suffering from rare diseases and let the seeds of “Little Blue Flower” love take root and germinate.
Zhu Yaping, deputy secretary-general of the Shanghai Soong Ching Ling Foundation, said that the Shanghai Soong Ching Ling Foundation has long cared for the charity and healthy development of women and children. This year coincides with the 130th anniversary of Mr. Soong Ching Ling’s birth. The foundation launched a series of public welfare activities, hoping to play a role in helping a healthy China and harmonious society.
For a long time, we have practiced the original intention of “insurance for good”
As a warm and responsible insurance company, Pacific Health Insurance has been adhering to the original intention of the insurance industry to be good since its establishment in 2014, and has continued to practice corporate social responsibility. In the field of public welfare, Pacific Health Insurance spares no effort.
Since 2020, the “Children’s Heart Circle” children’s health public welfare brand has been launched to help Chinese teenagers and children grow up happily with public welfare.
In June 2022, Pacific Health Insurance joined hands with Shanghai Sports University to launch the joint construction of the “Youth Health Promotion Center” and the “Sports Health Promotion Modern Industry College”. The Shanghai Experience Hall of the Shanghai Youth Health Promotion Center, which is about to be built, has a complete “immersive” sports health assessment system, which will contribute to the promotion of youth health.
In terms of caring for special children, Pacific Health Insurance established the “Xinganxin Autism Special Fund” under the CPIC Blue Foundation in April 2022, and launched the “Xinganxin” special critical illness protection plan for autistic children to help autistic children and their families.
The follow-up “Little Blue Flower” children’s rare disease care public welfare project was launched, which implanted the original intention of insurance into the Internet gene, organically combined public welfare and business, and opened a bold exploration to promote the long-term operation of public welfare institutions.
These public welfare projects, together with Pacific Health Insurance’s investment in rural revitalization and other public welfare fields, not only help the target groups in a down-to-earth manner, but also show a responsible and warm brand image, attracting more people to “benefit” and move forward for a long time.